Family decides to battle rare disease

Editor:

Our sons, four-year-old Connor and one-year-old Dane Mefford have a rare disease called Fanconi Anemia. While the diagnosis helped to explain previous medical problems, the news was devastating.

Fanconi Anemia is a rare genetic disease that impacts one in 500,000 children in the world. There is no known cure. FA affects the body’s ability to produce stem cells and conduct DNA repair. This leads to bone marrow failure, leukemia and other cancers at a very early age. Few people with this disorder live to adulthood.

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